Hi, I’m Jayne, and have a 7 year old daughter, Evie. We have not fully got to the bottom of Evie’s difficulties, but her current diagnoses are Autism, Moderate Learning Difficulties, Hypermobility and Sensory Processing Disorder. It has been a difficult path at times, but we remind ourselves that she wakes up with a smile on her face every morning, and that counts for a lot. Evie is currently in mainstream schooling with full time support, and although it has its ups and downs, she is currently doing well and enjoying it. I was so excited to find the PAN organisation, as the early years with Evie had been really hard when toddler groups and similar had seemed impossible to infiltrate or enjoy with a challenging child!
I joined PAN in early 2015 after changing jobs, allowing me the flexibility to search out these kind of support networks. My background is in NHS management, but my current work is in mine and my husband’s businesses. I became Secretary of PAN in May 2016 and I’m really enjoying meeting so many people who have many similar experiences to me. I love how it’s opened up a whole new world of information and experience, and hope that between us all we can make sure many other parents are fully empowered and supported throughout Derbyshire.
I have 2 children who both have additional needs. An 19 year old daughter born with 4 Congenital Heart Defects who has survived 2 open heart surgeries the most recent in 2012. In June 2014 she was diagnosed with Visual Dyslexia, Hypermobility and ADD (Attention Deficit Disorder)
My 9 year old son was diagnosed in April 2013 with ASD (Autism Spectrum Disorder)
I joined the 'PAN Family' in 2013 and it has provided me with much needed information about help that is available to us and has given me a group of people who understand exactly how hard it is to live with and care for a child with an additional need.
I set up PAN in 2011. I was attending a training session and voicing my annoyance that there was no support in Matlock, where I live, for other people in the same situation. I did such a lot of complaining that the lady running the training basically told me (in the nicest possible way) to 'shut up moaning and start a group then.
I am eternally grateful to her as this group has transformed my life. I have learnt so much from the speakers who have attended our meetings and I have made the most amazing friends. My son has also made friends with people who accept him and his little nuances.