Support Group Leader
Hello I'm Louise, I have 5 kids.....yes I did say 5 !
how pan helped
I have 2 children who both have additional needs. An 19 year old daughter born with 4 Congenital Heart Defects who has survived 2 open heart surgeries the most recent in 2012. In June 2014 she was diagnosed with Visual Dyslexia, Hypermobility and ADD (Attention Deficit Disorder)
My 8 year old son was diagnosed in April 2013 with ASD (Autism Spectrum Disorder)
I joined the 'PAN Family' in 2013 and it has provided me with much needed information about help that is available to us and has given me a group of people who understand exactly how hard it is to live with and care for a child with an additional need.
I set up PAN in 2011. I was attending a training session and voicing my annoyance that there was no support in Matlock, where I live, for other people in the same situation. I did such a lot of complaining that the lady running the training basically told me (in the nicest possible way) to 'shut up moaning and start a group then.
I am eternally grateful to her as this group has transformed my life. I have learnt so much from the speakers who have attended our meetings and I have made the most amazing friends. My son has also made friends with people who accept him and his little nuances.